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ZigZag Autism Services website is hosted on the platform.


Who we are


ZigZag Autism Leeds is a voluntary organisation registered with Leeds City Council.

(For easy readability we will refer to ourselves as “Zigzag” in this document)


ZigZag is a parent led support group offering parents and carers advice, support and guidance for those who care for a child or young person with an Autistic Spectrum Condition or similar conditions. The group offers help and support for families with or without a diagnosis, and holds regular autism friendly events for children and young people.


We want to be open about what we are doing and why. The purpose of this policy is to explain how Zigzag collects and uses the personal information you provide to us, whether it is shared online, via phone, via email, in letters, in any other correspondence, or by other people.


We think it is important to keep your personal data safe. Personal data means any information that may be used to identify you, like your name and or date of birth.

This page explains why we collect information about you. It also tells you what we do with your information and who we share it with.


1. What information do you collect?

We may collect information about you like:

  • Your first name and last name

  • Your date of birth

  • Your gender

  • Your child/children's name

  • Your address

  • Your email address

  • Your phone number​


2. Images

Zigzag Autism Leeds uses images (including videos) to showcase and publicise our events, which increases engagement with current members of our community, as well as with potential community members and supporters. We take the security and privacy of images seriously, and we provide guidelines for staff and volunteers.

Where images are processed using the lawful basis of legitimate interest or consent, the individuals featuring in those images have a number of rights that they can exercise over this data, such as the right to delete or rectify. The data subject is able to withdraw their consent, where given, or challenge the legitimate interest that has been assessed; this is commonly known as ‘opt-out’. If you wish to ‘opt out’, please contact

Please note that for images made available on the internet, Zigzag Autism Leeds can cease to use your images, but it may still be possible to find them on the internet, and this is beyond our control. Where images have already been used in printed publications, it will not be possible for them to be withdrawn.


3. When we collect information from you

We collect your information:

  • When you fill in the contact from on Zigzag's website

  • When you sign up to participate in any of our events

  • When you email us

  • When you contact us by telephone

  • When you supply your information to us via social media such as via Facebook Messenger.

  • When you or your organisation becomes one of our donors


4. What we use your information for

We may use the information that we have collected to:

  • Respond to your queries

  • Provide you with information and services connected to ZigZag

  • Thank you for a donation

  • To comply with safeguarding policy


5. How long do we keep your data for?

We do not keep your information for any longer than we need to in order to fulfil the purpose or purposes for which it was collected, or for any longer than is required by law, if that is longer.

6. How we collect and store your information

We take appropriate technical and organisational measures to ensure that the information disclosed to us is kept secure, accurate, and up-to-date, and that it is kept only for as long as it is needed in order to fulfil the purpose or purposes for which it is used.

You should be aware that the use of the internet is not entirely secure, and although we will do our best to protect your personal data, we cannot guarantee the security or integrity of any personal information that is transferred from you or to you via the internet. Any transmission is at your own risk. Once we have received your information, we will use strict procedures and security features such as encryption to try to prevent unauthorised access.


7. Your data protection rights

Under data protection law, you have rights including:

Your right of access - You have the right to ask us for copies of your personal information.

Your right to rectification - You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.

Your right to erasure - You have the right to ask us to erase your personal information in certain circumstances.

Your right to restriction of processing - You have the right to ask us to restrict the processing of your personal information in certain circumstances.

Your right to object to processing - You have the the right to object to the processing of your personal information in certain circumstances.

Your right to data portability - You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.

You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you.


If you would like to: access, correct, amend or delete any personal information we have about you, please send us an email to


How to complain

If you have any concerns about our use of your personal information, you can make a complaint to us at


You can also complain to the ICO if you are unhappy with how we have used your data.


The ICO’s address:


Information Commissioner’s Office

Wycliffe House

Water Lane





Helpline number: 0303 123 1113

ICO website:

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